So we went over to Duke today for what we thought was going to be the ABR but unfortunately they did the same hearing test that they did last week at the ENT in Raleigh. I am getting a close up glimpse of how screwed up healthcare is...electronic medical records would have certainly helped Duke more fully understand Dustin's case and perhaps we wouldn't have needed to do another hearing test like last week.
We did get to meet with the Duke ENT vs the Raleigh ENT and she recommended the following sequence:
1. Spray steriods (Flonase) for snoring and any potential obstruction for breathing during sleeping; this may also address (although not fully) any issues related to apnea or adnoids (see #3)
2. Prescription drops to clear additional obstruction in one of the ear canals; kids with Down sometimes have smaller ear canals increasing the incidence of obstruction (definitely the case with Dustin)
3. Come back for another Duke ENT eval regarding obstruction and evaluate whether an ABR will be needed; if so, we can schedule BOTH the sleep study to evaluate whether there are any adnoid or apnea issues (finally!) AND perform an ABR > this way Dustin only goes under anethesia once. This make sense to us...
p.s. Rob joined Facebook and evaulating how to pull together this blog, Twitter and Facebook to keep everyone in touch
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1 comment:
Oh, gosh - I am so sorry you
had to go through this, but
the Duke ENT maybe on to something
and I pray you will get the answers soon.
God works slowly- but you have great doctors.
Ah, yes, the Healthcare system.
I won't even go there.
Thanks for the Facebook invite,cousin. And no I don't TWITTER.
Hugs and kisses to my adorable
and wonderful family.
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