OK...so we sometimes get carried away with titles to our blog posts...
We titled this one because Dustin's first appointment with a physical therapist was yesterday. Sometimes, the kids with Down have muscular development challenges. This can delay things like walking, etc. The PT said Dustin's muscular development was very good at this point - on par with "normal". That said, she still gave us some exercises that we, including Zach can do with DJ. We can move his arms and legs side to side and up and down....so we can actually say that DJ has his own aerobics class (hence the post title)!
DJ now weighs in over 8.5 lbs...so this is moving along nicely. His size is helping with nursing (hopefully we'll get to the point where he does not also need a bottle - this would mean Lisa does not have to pump anymore).
The other day Dustin slept through the night - praise! This guy really does sleep well...
Rob's stress level is a bit better because one of his work projects is wrapping up.
Optional Prayer Request: Pray for comfort as we grieve the loss of the Sox to the Rays. Also pray that Dustin Pedroia gets the AL MVP...he really does deserve it as he was near tops in average, tops in doubles, tops in hits and he should be a gold glove as well.
Tuesday, October 21, 2008
Friday, October 10, 2008
Where You Been?
Sorry everyone for no update in a while. We've kinda settled into a routine and neglected the blog. We don't want to take for granted how many people continue to pray for us so we will try to more frequently update you.
As of 22SEP, Dustin weighed 7lbs, 9oz. He was gaining weight at approx one oz a day - this rate won't keep up forever. The pediatrician told us he was very low relative to kids his age (he is 12 wks old today so we think he is more like 9lbs) but he is gaining at a very rapid rate. No concerns - praise.
The weight gain perhaps is a factor in his excellent sleeping. The typical routine is he eats (mix of bottle and Lisa nursing) for the last time at night at apprx 11p then he gets up only once during the middle of the night and then he won't awake again until 7 or 8am most days. This allows us to get decent sleep. Praise.
We saw the cardiologist as well - kids with Down are more prone to have heart problems such as holes in the heart - some of which require surgery. The cardiologist did find several very small minor holes but indicated that he felt very confident that these would likely close on their own perhaps within the next few months. Praise that no surgery required for this. We will continue to monitor this but no surgery for now.
We will be starting developmental physical therapy soon. In Nov we have our first appt at the Duke Down Syndrome clinic. Also in Nov we will have another cardiology appt, and an appt for urology for a circumcision.
Dustin got his "shots" so we have started bringing him out more and to places like church where there are bigger groups of people and with the shots we have less concerns about him being susceptible to others' colds, etc. You still have to watch for this but it is nice to have everyone go to church. Previously one of us would go and bring Zach and the other would stay home.
Praise for weight gain, nice routine, decent sleep.
More then anything, please pray for Rob to manage his stress - it is very hectic at work for him.
Thanks for all of your emails that you send to us - great articles about success with Down, etc.
Below are some links to recent articles:
Prom King with Down Syndrome Goes to College
Life's Essential Joys
As of 22SEP, Dustin weighed 7lbs, 9oz. He was gaining weight at approx one oz a day - this rate won't keep up forever. The pediatrician told us he was very low relative to kids his age (he is 12 wks old today so we think he is more like 9lbs) but he is gaining at a very rapid rate. No concerns - praise.
The weight gain perhaps is a factor in his excellent sleeping. The typical routine is he eats (mix of bottle and Lisa nursing) for the last time at night at apprx 11p then he gets up only once during the middle of the night and then he won't awake again until 7 or 8am most days. This allows us to get decent sleep. Praise.
We saw the cardiologist as well - kids with Down are more prone to have heart problems such as holes in the heart - some of which require surgery. The cardiologist did find several very small minor holes but indicated that he felt very confident that these would likely close on their own perhaps within the next few months. Praise that no surgery required for this. We will continue to monitor this but no surgery for now.
We will be starting developmental physical therapy soon. In Nov we have our first appt at the Duke Down Syndrome clinic. Also in Nov we will have another cardiology appt, and an appt for urology for a circumcision.
Dustin got his "shots" so we have started bringing him out more and to places like church where there are bigger groups of people and with the shots we have less concerns about him being susceptible to others' colds, etc. You still have to watch for this but it is nice to have everyone go to church. Previously one of us would go and bring Zach and the other would stay home.
Praise for weight gain, nice routine, decent sleep.
More then anything, please pray for Rob to manage his stress - it is very hectic at work for him.
Thanks for all of your emails that you send to us - great articles about success with Down, etc.
Below are some links to recent articles:
Prom King with Down Syndrome Goes to College
Life's Essential Joys
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